Why some people don’t want your mental or physical health to get better..

When I was at the World Diabetes Congress in Melbourne last year, I was overwhelmed by the many different agendas being presented by the hundreds of groups represented at the conference. As a representative of Diabetes Australia, I had no agenda except to learn and offer up my own experience to all these ‘experts’. We were told that there was a unified agenda- to get proper treatment to all who need it, and to ultimately cure diabetes. But it was clear that the scary people in white coats showing me the newest medication that I ‘needed’, would be very upset if such a cure was discovered. Billions of dollars were being made by these pharmaceuticals and it was an odd experience- being a young type 1 diabetic and realising that a lot of people benefit financially from my broken pancreas.

One guy, Charles Mattocks, a celebrity chef in the US, came with a different agenda. He gave a seminar on the power of organic food, and it didn’t go unmentioned that he was given one of the smallest rooms to speak in, though people were spilling out and filling up overflow. He said himself that he wasn’t very popular at this conference, and that his ideas were scoffed at. But I was inspired by him and the people that got up and gave testimonies of the power of organic eating in improving both type 1 and type 2 diabetes. (I was also completely star struck when I took a photo with him and he asked me to go for a drink that evening…).

As a type 1 diabetic, and as someone who has suffered mental illness, I know better than anyone the importance of medication. Indeed there is no substitute for the artificial insulin I rely on minute by minute to stay alive.
But is there something I can do to improve my bodies response to that insulin? To avoid nauesating drugs that I’ve been prescribed liked diabex? I have found much more healing in taking apple cider vinegar, cinnamon, fish oil etc, than I ever did in diabex. Likewise, going off dairy products gave me more benefits than I predicted – better response to insulin and thus lower sugar levels, more energy, clearer skin, weight loss, improved mental health. There is so much healing to be found in food.

Mental health is a hot topic, and a buzz word popping up all over blogs , the news, and conversations. It’s a word our parents didn’t grow up using.  It’s health of the MIND. Everyone has mental health and everyone needs to look after it. In the same way everyone has a degree of physical health to look after, improve and protect. Staying mentally healthy should be on the radar as much as staying physically healthy… for most people, both types of health need more attention.

But, lets not also forget that the mind is part of the body. It’s an organ, and the most complicated and important of them all. When the brain is suffering, the entire body suffers. Likewise when the body suffers, the brain can also suffer.

The interconnectedness is so important to understand. Staying mentally healthy can improve your quality and duration of life.
People with mental illness on average, die 25 years younger than people without mental illness, because of physical health problems. For example, someone with schitzophrenia is 4 times more likely to have diabetes , 5-7 times more likely to have colonary problems.. and vice versa, a person with type 1 diabetes, is 2 or even 3 times (according to some studies) more likely to development depression.  So we can’t treat mental health separate to physical health. They are inherently linked.

To look after your mental health takes work. I often look back on my own mental health journey, and think of the pills I have been prescribed and the professional help I have received, and realise the lack of preventative measures that I had in my life to avoid the ‘episodes’ that I have suffered. While I see the value in medication for many people that I know, I am also wary of the over-prescribing of these meds as a first response rather than a last resort..(did you know that some dogs and cats are now on anti-depressants???).

Bottom line – like most bad things in the world, someone is making a shit load of money out of our unhappiness. Pharmaceuticals are dependant on you being anxious and unhappy, so don’t look to them for advice. This is also true of physical health.. there is so much healing to be found in food, exercise and habits, and yet, people pop pill after pill with side effect after side effect in pursuit of health.

As mental health problems are on the rise, we must see the link between the increase of depression and anxiety, and the lifestyle promoted by modern society.

A sustainable approach to physical and mental health must include all the goodness of veggies, fruit and organic foods that don’t pollute your body and mind with preservatives, additives, pesticides and all sorts of shit.

Be creative and be mindful of your health!

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100 days of being a travelling diabetic

I’ve been debating with myself whether I should write this piece or not… I don’t want my travelling experience to be defined or remembered by my diabetes… but I can’t ignore the huge portion of my brain that is consumed by questions of insulin,  sugar levels and calculations between the two while I’m on the move.

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Travelling has been inspiring, challenging, exciting, scarey, amazing,  exhausting…and completely worth all the extra effort it takes for a diabetic to live the spontaneous and unpredictable life of a traveller. Be

fore I set off on my travels, I had a little look for articles or blog posts from fellow type 1s who have backpacked, and didn’t find much. My diabetes has been extremely difficult to control and my hba1c very high since I diagnosed over 14 years ago. So, as someone whose diabetes has played a huge part of my life, I’m going to share some of my travelling experience.

It’s been 100 days since I left home, the last 79 of which I have been backpacking my way around Europe… with a few more to go. We didn’t do the whole book in advance kind of trip.. we are going one day at a time, seizing opportunities, risking homelessness, and embracing the unknown… It’s the best and the scariest way to travel. 100 days is a lo

ng time to be away from my pharmacy, among other things. Which brings me to the first pressing question of a travelling diabetic..

How do I do the whole insulin thing? Pump vs pens

I was on the insulin pump back in Sydney, and liked being on it (as much as you can like being attached to a machine 24/7). But I looked at the consumables (sets and lines) that I’d have to carry for the 3 to 4 months I planned to backpack, as well as the insulin, and realised it wouldn’t physically be possible without bringing along a suitcase in addition to my pack.. which kinda ruins the whole backpacking thing. So I switched back to pens and stocked up on 6 months worth.

The best thing, I was told,  for travelling with insulin is Frio Bags.. little insulating bags that are activated by water and supposed to keep insulin cooled for 48 hrs… I haven’t found them to be that effective.  They are heavy in my pack, and the insulin always comes out a bit warm.. but they’ve been better than nothing. So on planes,  trains, cars, buses.. the insulin is in these packs. As soon as I get somewhere I find a fridge and put it in. It’s been a bit stressful at times because if my insulin isn’t cool it stops working properly… and if it’s damaged, stolen from a hostel fridge, or lost that’s my life line gone. We have been mostly couchsurfing and staying with friends, so that’s been easy, and every hostel has had a fridge and I’ve never had any stolen.

So storing and transporting insulin has been annoying but ok. A few weeks ago I had a very bad patch of high sugars and suspected my insulin was damaged.. it is possible to buy insulin over the counter in most countires in Europe. Novo rapid for example was about €55 in italy, €45 in france and CHF 75 in switzerland. Levimir is more expensive by about €20 per box.. but when it comes to living or dying, that’s not a lot of money to pay. In every country that iI’ve asked, you can walk into a pharmacy and show your current insulin, and they’ll give you new insulin without a script.

The second question of a travelling diabetic…

What to do for hypo food?

I dont hypo very much,  but I usually have fruit or some kind of snack on me, and for the immediate emergency,  I carry little cafe sachets of sugar in my diabetes kit.. I take them from cafes when i get a coffee and keep a supply on me at all times! When visiting museums and galleries, you’re often not allowed a big bag, so my small diabetes purse with sachets is fine.. I add them to water or just have them straight in an emergency. Explaining to security during a hypo why you’re breaking the no eating policy can be very stressful.

Carb counting

Counting carbs on wine tours, pub crawls, pizza and gelato eating frenzies in Italy and other crazy food indulges you don’t want to miss out on while travelling, is nearly impossible.  I have all but given up. I found upping my background insulin,  especially on days when I’m stuck on a bus or train for most of it, is helpful.  Some days I will do a lot of walking, swimming and bike riding, which usually means it will be a better sugar day. But I have been very high for a lot of my trip.. bringing me to…

Diabetic exhaustion

This has by far been the toughest thing. Running on high sugars for days at a time, while trying to make the most of my short time in a new city is very challenging.  I don’t want to miss out, but I also have to look after myself and listen to my  body. Sometimes it means an early night. Sometimes it means a day of reading in a park. For travelling diabetics, sleepness nights of high sugars, plus the overwhelming high induced exhaustion only diabetics can relate to, lack of routine,  new foods, more alcohol than usual ,injecting up to 9 times a day, and the endless drone of checking sugars levels 10+ times a day and getting frustrated at the wild numbers, only intensifies the travelling experience of being generally rundown. Getting reading after reading in the 20s, only to plummet overnight and scramble around in the dark for food, gets old very quickly. I’m going to be honest and say.. I’ve struggled,  emotionally and physically.  There’s no point saying “You can do whatever you put your mind to!”, when your body can’t keep up- know your limits.

Being down about my diabeties is the loneliest and lowest experience, especialy when I’m away from my family and support network. I’ve had less down days than I thought I would, but I think its important for me to have them.  Some days I need to cry and be angry at my body, so that the next day I can get up and refuse to let it stop me from having the life I want.

On my down days, I worry about being a burden on those around me, and I feel totally misunderstood when my high sugars wreak havoc with my mood and energy.  But I keep thinking of all the things I want to do with my life and each of them is a reason to not let diabetes win.

Being a diabetic traveller means you have to do a bit more prep and planning,  expect that some days will be horrible,  and that sometimes you will have to take things as they come and not do absolutely everything. Being flexible and gentle with yourself is the best advice I could have recieved. Learning your own body and its needs is imporant for all travellers. As a diabetic you can definitely travel and do it for as long and as far as you can get insulin for! Fear is the biggest enemy.

An ugly word and its poem

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So apparently, according to the posts of all my diabetes groups and facebook friends who have diabetes, it’s Diabetes Blog Week.

I’ve been meaning to post another entry here for a while now, and this seems like the appropriate time to do so! One of the suggested topics on which to write (for Tuesday… but I can’t stick to deadlines) is….poetry. People are encouraged to “write a poem, rhyme, ballad, haiku or any other form of poetry about diabetes”. Seems to me a paradox… diabetes and my love of poetry, can intersect?  But below is my first attempt at a poem about Diabetes.  I’ve recorded it, and put the words, because this one needs to be read in the way I want it to be read. (ha) So please click below to hear it 🙂 

http://vocaroo.com/i/s1eVsIaYAXUi

Diabetes – so medical, so ugly and mechanic is this word
It doesn’t inspire in me poetry, and that it could seems absurd
l mean… what would rhyme with Diabetes?
I could talk about unrelated treaties,
or make a vague reference to John Cassavetes…
was I diagnosed in Tahiti? Or perhaps make a plea for a pizza from Criniti’s.
Diabetes.

No, it seems uninterested, this word, in making itself pretty,
In dressing up in nice sentences and disguising as witty
It always feels so harsh as it sits on my tongue,
And almost like poison as from my lips it is flung,
So awkward does it fall, like a brick in conversations,
I fumble to excuse it and explain it’s connotations.
Diabetes.

But it is not just a word, not just four syllables mispronounced by some,
No, it takes up far more space,  pretends to be the thing I have become.
It is written on the extensions of my essays and RSVPs to events I’m not up to attend,
It’s my late note to work and my apology to a hurt or forgotten friend.
It compounds any stress with its constant need for attention,
It will stomp its feet if, in a day, it doesn’t get a mention.
Diabetes.

It entered my vocabulary when I was eight years old,
“Your pancreas doesn’t work. You have diabetes” I was told.
It meant nothing to me, this foreign sound, this doctors spiel,
It had something to do with blood and syringes at every meal.
It had something to with sugar and not eating it.. except when I should..?
There were lots of rules, of things I couldn’t do.. but would.
It means something different every year, always changing, rearranging
its priority and impact, getting bigger and then again smaller, exchanging
my nights out for days in bed, my excitement for the future for dread.

Diabetes.
But, and I must be reminded, it is only part of my life, and not the whole.
As it rests, always, on my mind that it all but controls
in a game of numbers, always striving, always counting,
a constant voice, whispering then shouting,
It will never be pretty or witty, or make a rhyme that isn’t shitty 
But it is written again and again, and it will repeat, 
This word so frequent in my story- with it all other words compete
But there are so many words that should be LOUDER in my story,
There are so many characters and motifs that deserve more glory.
Diabetes

It is pronounced in various ways, often as sickness or destruction,
As an awkward part of my life that requires too much instruction
But what if I said it differently, as it rears its ugly head,
what if it was something that gave me dignity when it was said…
Not excusing or minimising, or pretending it can be understood
but saying yes I have this word in my life, but in its bad maybe it can show something good?
If I spoke it as evidence of endurance, of health and of life?
And not just as a definition for my pancreas on strike.
Diabetes.